About my hippy boy {part 1}…

Levi was born past due in Tennessee. We didn’t have any complications during my entire pregnancy, and he wasn’t breeched. I was induced at 40w1d pregnant because I was rear-ended and pushed into a guard rail. After 40 hours in the hospital, Levi was delivered via cesarean after the failed induction at a healthy weight of 8lbs 5oz. He is the light of my life and was perfect from the beginning.

As a new parent, I did EVERY wellness visit and suggestion from the pediatrician. Anytime he was sick, I was sure to help him and got care from his providers. Over 2 years of life, he crossed the hands of three pediatricians due to jobs changing and other than his slow weight gain and little eczema, there were never any concerns for my son from the doctors pertaining to his hips.

When my son began walking around 13-14 months old, I noticed a waddle that I couldn’t compare to any other toddler he played with. Every time we went into the doctor’s office and filled out the questionnaire, when the question asked “Do you have any concerns about your child?” I wrote ‘his waddle’ in cursive each time. My concerns were quieted, and I was told that ‘toddlers toddle’. Additionally, any time I mentioned it to a friend or family member, everyone shrugged that he was fine. We even googled and it stated that the gait can change up to 3 years old.

At his 2-year wellness checkup, I mentioned it one more time before we were moving away from the area. There was agreement that he did have a waddle. It was suggested to get an x-ray done at the hospital for review or to go to an orthopedic surgeon. Due to the length of time with my concerns, I elected an orthopedic surgeon. Another week went by before we were headed down to Nashville to go to Levi’s first appointment.

When arriving to the orthopedics’ office, we filled out paperwork and answered basic questions. I remember being asked why we were there by the nurse as we walked back and I said “my son waddles not comparable to other toddlers”, her response “All kids are different and waddles are normal.” I quickly questioned myself “Why am I here? I’ve totally blown this out of proportion.”

As Levi munched on his snacks, the doctor laid him down in my lap and played with his hips. He instructed we’d be doing an x-ray which I assumed this was just normal. Because I was pregnant, my mom went into the x-ray room with him and scans were completed. Within 15 minutes the doctor was walking into the room with us.

“I have some unfortunate news.” He proceeds to explain that Levi’s hips were dislocated. I was shocked, but I said, “Okay, so will you just pop it back in then today?” Boy was I wrong. He informed me how this would be a surgery, explained the process and that he wouldn’t be the guy for the job as he was nearing retirement within the year.

Tears. Lots and lots of tears.

I was handed the x-ray and sent on my way. I collected my mom from the waiting room where I eagerly tried to get on the elevator and outside before I mentally lost it.

I couldn’t breathe. While my mom repeatedly asked for news, I begged to just get outside and fast. I sat down on the nearest bench and just cried uncontrollably. Everything was going through my mind about how I waited too long. How I was told by someone I respected that I was blowing this out of proportion, and he was fine. But what I realized so quickly is I was right, not that I wanted to be right, but I was. I knew something was wrong for a while and our adventure was just about to get started…

2 thoughts on “About my hippy boy {part 1}…”

  1. Our stories are so similar. And frustrating! My daughter was 4 when she got the diagnosis. Actually just a week before her fourth birthday. I too had a normal pregnancy. Harper was breech for a couple of weeks but flipped her self and I had a vaginal delivery. I’m a nurse practitioner and my husband is an ER doctor so we really only took her for well child checks and vaccinations. However, just like you , at every appointment when I was asked if I had any concerns I mentioned that she had a funny gait. They told me she had a tibial torsion. I even specifically took her when she was a little over three years old and asked if she could have x-rays. They watched her walk and said that they didn’t think it was necessary to exposure to radiation because she would “grow out of it”
    I took it upon myself to take her to an orthopedist and he noticed a limb discrepancy. He did xrays and called me that afternoon and told me she had a left dislocated hip and that the socket wasn’t right on the other side. Because we are in the medical field we were able to get a consult pretty quickly with a pediatric orthopedist in Memphis. He recommended Scottish Rite in Dallas because we were Texas residents. The orthopedist that diagnosed her sent us to Dallas children’s. So we went to three consults to decide what was best surgery wise. We ultimately decided on Scottish rite. She had an acetabular osteotomy with cadaver bone graft in October and was in a spica for seven weeks. She has now been out for three weeks and is walking with a walker. I’ve been through all the emotions that you have.- frustration , anger at the Peds who failed her and mostly sadness for such a late diagnosis.

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    1. Miranda, I am SOO sorry I am now just seeing this. I’m new to all of this and I must have overlooked the notification of your comment.

      I’m so sorry to see you went through the same feelings I did. I truly don’t wish them on anyone. If I learned anything it’s to listen to the mama’s gut! How is your little one?

      Like

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